Albinism is the “congenital absence of any pigmentation or coloration in a person, animal or plant, resulting in white hair, feathers, scales and skin and pink eyes in mammals, birds, reptiles, amphibians and fish and other small invertebrates as well.”Varied use and interpretation of the terms mean that written reports of albinistic animals can be difficult to verify.

For ages, Judith had a feeling that she would struggle to become pregnant. There wasn’t a medical explanation for this — it was simply a niggling fear.

She and her husband struggled to believe they would ever become parents after years went by without her becoming pregnant. “I found myself getting anxious and desperate,” Judith first wrote on Love What Matters.

“The fear remained no matter how hard I tried to stay positive. However, Eight years down the line, my husband and I decided to go for our second round of IVF. The first of which failed, as well as other various procedures and fertility treatments. Every ultrasound visit after that was horror”
Judith

The couple could hardly contain their joy when that second round of IVF proved successful.

Judith was carrying twins — a boy, Kamis, and a girl, Kachi.

It felt remarkable that after all these years, their aspirations and dreams of a family were about to be real.

However, mum’s joy quickly turned to horror as doctors broke the news that Kachi was “at risk and might not make it”. “Every ultrasound visit after that was a nightmare as Kachi was far behind in growth whiles Kamsi did great.

“Finally, at 37 weeks, I had to be induced immediately because I was told that Kachi had stopped growing..” After the birth Nurses let Judith hold her daughter briefly before she was whisked to the NICU.

“The first time I saw her, I wondered if the nurse was handing me my baby, or someone else’s,” Judith said. “I waited a few seconds for someone to tell me there was a mix-up?” “Soon the joy of seeing them both healthy surpassed any other feeling at that instant.”
“How did I get black and white twins?”

Several days later Judith and her husband were told that their baby girl had albinism.

“I loved my princess like every mother would love her baby but worried about her condition,” Judith said.
“I worried about her future, how society would treat her, how she’ll be accepted.
“Gradually, worry turned to sadness and I started questioning “I envied other black babies and thought, ‘Why me? Why was I the one to have an albino baby?’
“How did I get black and white twins?”
“I threw the braille sheets in the garbage”

Unfortunately, medical professionals were quick to affirm Judith’s worst fears and told her that Kachi would struggle to see and would likely need to learn to read braille.

“I couldn’t imagine Kachi reading with braille and threw the braille sheets in the garbage.” She said

“She’s so smart and has a strong personality. She knows what she wants and will always go for it.
“I always tell her how beautiful she is, because she really is.
“I’m not sure she`s aware of her uniqueness at the moment, but eventually she’ll know.”
“It’s my responsibility to educate her and teach her to love herself no matter what.

Albinism

Albinism affects the production of melanin, the pigment that colours skin, hair and eyes. It’s a lifelong condition, but it doesn’t get worse over time.

People with albinism have a reduced amount of melanin, or no melanin at all. This can affect their colouring and their eyesight.

Albinism is caused by faulty genes that a child inherits from their parents.

Symptoms of albinism

Hair and skin colour

People with albinism often have white or very light blonde hair, although some have brown or ginger hair. The exact colour depends on how much melanin their body produces.

Very pale skin that burns easily in the sun and doesn’t usually tan is also typical of albinism.

Eye colour

Someone with albinism can have pale blue, grey or brown eyes. Eye colour depends on the type of albinism and the amount of melanin. People from ethnic groups with darker pigmentation tend to have darker coloured eyes.

Eye problems

The reduced amount of melanin can also cause other eye problems. This is because melanin is involved in the development of the retina, the thin layer of cells at the back of the eye.

Possible eye problems linked to albinism include:

poor eyesight — either short-sightedness or long-sightedness, and low vision (sight loss that can’t be corrected)
astigmatism — where the cornea (clear layer at the front of the eye) isn’t perfectly curved or the lens is an abnormal shape, causing blurred vision
photophobia — where the eyes are sensitive to light
nystagmus — where the eyes move involuntarily from side to side, causing reduced vision; you don’t see the world as “wobbling” because your brain adapts to your eye movement
squint — where the eyes point in different directions

Some young children with albinism may appear clumsy because problems with their eyesight can make it difficult for them to perform certain movements, such as picking up an object. This should improve as they get older.

How albinism is inherited

The two main types of albinism are:

oculocutaneous albinism (OCA) — the most common type, affecting the skin, hair and eyes
ocular albinism (OA) — a rarer type that mainly affects the eyes

Autosomal recessive inheritance

In most cases, including all types of OCA and some types of OA, albinism is passed on in an autosomal recessive inheritance pattern. This means a child has to inherit two copies of the faulty gene (one from each parent) to have the condition.

If both parents carry the gene, there’s a 1 in 4 chance that their child will have albinism and a 1 in 2 chance that their child will be a carrier. Carriers don’t have albinism but can pass on the faulty gene.

X-linked inheritance

Some types of OA are passed on in an X-linked inheritance pattern. This pattern affects boys and girls differently: girls who inherit the faulty gene become carriers and boys who inherit the faulty gene will get albinism.

When a mother is a carrier of an X-linked type of albinism, each of her daughters has a 1 in 2 chance of becoming a carrier and each of her sons has a 1 in 2 chance of having albinism.

When a father has an X-linked type of albinism, his daughters will become carriers, and his sons won’t have albinism and won’t be carriers.

Read more about how mutations are passed on.

Genetic counselling

If you have a history of albinism in your family or you have a child with the condition, you may want to talk to your GP about getting a referral for genetic counselling.

A genetic counsellor provides information, support and advice about genetic conditions. For example, you can discuss with them how you inherited albinism and the chances of passing it on.

Read more about genetic testing and counselling.

Diagnosing albinism

Albinism is usually obvious from a baby’s appearance when they’re born. Your baby’s hair, skin and eyes may be examined to look for signs of missing pigment.

As albinism can cause a number of eye problems, your baby may be referred to an eye specialist (ophthalmologist) for tests to check for conditions such as nystagmus, squint and astigmatism.

Electrodiagnostic testing is also sometimes used to help diagnose albinism. This is where small electrodes are stuck to the scalp to test the connections of the eyes to the part of the brain that controls vision.

At the risk of sounding like one of those zealots, it is time that we begin to openly draw a distinction between our Lord’s Ecclesia and Constantine’s Church. All of us that are serious about our relationship with our Father and our walk of faith have recited, or at the very least heard it recited, the statement Jesus spoke to Simon Peter: “And I say also unto thee, that thou art Peter, and upon this rock I will build my church, and the gates of hell shall not prevail against it”. When we read the word “church” in this passage, we immediately begin to visualize a building or a group of buildings—because that is how we’ve come to understand “church” as we know it—and equate that to what Jesus said as written in the quoted passage. Or perhaps we envision a group of people that congregate in a building on Sundays or some other day during the week.

For the last 406 years, most of the Christian world has been conditioned by the teachings of the King James Version (KJV) of the Holy Bible. For the most part, this translation has served a very important role in shaping the ideals and beliefs of people and nations around the world. For the purposes of this article, I want to address a specific point of conflict with the way the KJV text translated a particular word from its original use. That point is this: “how did the word ‘ecclesia’ get replaced with the word ‘church’”? The answer to this question will no doubt offend some and open the eyes of others. Nonetheless, it is a question that anyone who is serious about their walk of faith should consider.

One of the other agendas of the KJV translators was the change of the word “ecclesia” to the word “church”.

During the creation of the KJV one of the mandates of King James I of England to his team of translators was that they were to ensure that the new version would conform to the ecclesiology (that is, simply put, the doctrinal beliefs, architecture, and adornment) and reflect the Episcopal (Bishop’s oversight) structure of the Church of England and its belief in an ordained clergy. If this was the only instruction to the translators, it alone would have been enough to call into question the purity of their finished work, or at the very least, it would lead to the inevitable concern about a hidden agenda regarding the final work. But this was not the only coercion. One of the other agendas of the translators was the change of the word “ecclesia” to the word “church”. I’ll deal with “ecclesia” later in this article. For now, let’s focus our attention on the word substituted in the place of “ecclesia”.

“Church” was originally used by Emperor Constantine when he made Christianity the state religion of Rome around 310 A.D. Thus the word “church” became the standard of assembly for the Christian religion, and has continued to be used this way ever since. By the time of the creation of the KJV, the word church presented itself as a satisfactory pawn for King James to perpetuate the superiority of the English monarchy over the Kingdom government of the Body of Christ.

Throughout the KJV translation, the word “church” was substituted for the Latin word “ecclesia”. These two words do not mean the same thing, neither do they derive from a common word; in fact, they convey two significantly different understandings. In short, the translators of the KJV deliberately altered the meaning of critical passages of scripture to divert the reader’s and believer’s understanding as it pertains to who Jesus declared them to be, and what our position in the Kingdom of Heaven truly is.

The word “church” was substituted 112 times for the word “ecclesia”

The word “church” was substituted 112 times for the word “ecclesia”. There are three other translations of the same word into the word “assembly”. One could easily become suspicious as to why these three instances were not also translated “church”. Given that the words do not mean the same thing, why would the translators make such an obvious alteration to the “Holy Scriptures”? The exact answer cannot be definitively concluded, but it is not hard to arrive at a reasonable conjecture of a deliberate agenda to alter our understanding of our Kingdom position relative to the state’s desire to maintain control of the Christian religion.

So what does the word “church” really mean? In the earlier Greek, it was pronounced “kuriakos” or “kuriakon.” The meaning of ” kuriakos ” is understood by its root, ” kuriakos,” which means “lord.” Thus, “kuriakos” (i.e.,”church”) means “pertaining to the lord.” It refers to something that pertains to or belongs to, a lord. (Note the usage of the lowercase letter “L” here”¦this particular usage refers to someone having power, authority, or influence over someone, and generally refers to someone in the position of a master or ruler in an established monarchy.) The Greek “kuriakos” eventually came to be used in Old English form as “cirice” (kee-ree-ke), then “churche” (kerke), and eventually “church” in its traditional pronunciation. Church from its original Old English meaning referred to a public place of worship.

Paul and Silas was not building churches they were establishing the Ecclesia!

Now let’s look at the word “ecclesia”. Ecclesia [from medieval Latin and Greek, meaning “summoned” or “called out”] means “a regularly convoked assembly”, especially the general assembly of Athenians. It was the name given to the governmental assembly of the city of Athens, duly convoked by proper officers and possessing all political power including even juridical functions. Consider Acts 17:1-7, and in particular verse 7: “Whom Jason hath received: and these all do contrary to the decrees of Caesar, saying that there is another king, one Jesus”. We can see here that what Paul and Silas were doing was inciting insurrection among all those that would hear and believe their preaching. They were not trying to change Judaism, they were establishing the ecclesia.

The Ecclesia is NOT the “church”. This is something that believers have been told since the days of Constantine, in order to exercise control over us and to keep us from understanding the true identity of our dominion. We, the Ecclesia, are the governing body of our Lord in the Kingdom of Heaven. Now, in this season, Holy Spirit is once again raising up voices to give understanding to the Ecclesia”¦that we are not “the church” as we have been told. He is revealing to us that we must come out of this Constantinian religious system and begin to embrace our true sonship, our inheritance, and our authority as heirs of righteousness and heirs of promise.

In this season, those who are hungry for the truth of our identity will begin to hear the sound of the call to the Ecclesia. I encourage you to pursue that sound as it will lead you to its source: Holy Spirit! There you will find the truth of who you were created to be. There you will find true worship of your Father in heaven. There you will find your place in the Godhead. Don’t be afraid of what you begin to hear. Holy Spirit will not allow you to be misled or seduced. He will guide you into ALL Truth.

BLESSINGS!

Tag: inheritance

Mum Shocked After One Twin is Born with Albinism: Real Life Story